Troy just called from his appointment. Everything went as well as it could. The infection appeared to be local only to his incision site> Dr. was able to drain the rest of the infection and pack the wound in the office. He is sending Troy home with a couple antibiotics. Troy was able to get the outer bag removed and they tested his internal pouch. The capacity and valve quality look good and Troy can now start learning to manage a new system. Troy is excited to have the bag off but scared of his new lifestyle and learning to manage his new setup, especially out in public. He still has weight lifting restrictions of 10 lbs for another 3 weeks. All of this news is a huge answer to a lot of prayers that I know each of you have been lifting up. We are so thankful. Troy should be home in about five hours and so far no Grayson activity. I am so exhausted that I am going to try to get some sleep now. I don't think my body or brain can take much more at this point. My mom brought Gavin over. I missed him so much. I don't feel like I've been much of a Mom this past week or so. I feel bad, like I'm letting him down but right now I can barely hold my head up. I think we'll both nap and feel better later.
God is bigger than my box.
Alicia
Thursday, February 4, 2010
Just said "Goodbye"
It's 4am and I just said "goodbye" to my husband for the second time in a month. Mid and Dick are driving him to Cleveland for his appointments. Neither of us slept tonight. I avoided tears by staying busy, helping him get dressed, packing his bag, fussing like I do. I was fine until I kissed him goodbye and he eased himself into their car, watching him try to stay strong as he adjusted the seat to try to make him as comfortable as possible and strap a pillow over his belly to help guard against the bumps. It was then that I realized he was driving 4 hours away to manage an unfair lot in life and I was alone in a cold garage praying a baby stays inside so that his daddy can meet him for the first time with me. It is just too much right now. This hurdle is so small compared to what we've been through but in my current state it is just as tear worthy.
Troy is getting tired. The pain takes him to his limit and if that isn't bad enough there is always a side of humilitation. I love him so much it breaks my heart. I feel like a part of me dies when he starts to give up. All I can do is pray. I pray for his strength, my strength, emotional and physical stamina...I pray when I don't even know the words. As I give up my control to God he gives me peace.......thank you Lord for that peace....maybe now I can get some rest.
Is it too late to take an ambien?
Alicia
Troy is getting tired. The pain takes him to his limit and if that isn't bad enough there is always a side of humilitation. I love him so much it breaks my heart. I feel like a part of me dies when he starts to give up. All I can do is pray. I pray for his strength, my strength, emotional and physical stamina...I pray when I don't even know the words. As I give up my control to God he gives me peace.......thank you Lord for that peace....maybe now I can get some rest.
Is it too late to take an ambien?
Alicia
Wednesday, February 3, 2010
Drama - Grayson must stay in - Pray for Troy
Wow what 3 days brings. We have great news and stressful news. I don't know how else to explain it but by starting at the top.
1.) On Monday night I opened mail that had Troy's pathology results from Cleveland in it. Praise the Lord- all of Troy's lymph nodes came back negative for cancer and his tumor had been shrunk by chemo and radiation down to 1.1cm. The rest of the bowel that was removed looked healthy. From everything I can understand from the report it looks like an answer to many, many prayers. The only thing that can explain the positive lymph node tests from his ultrasound in October and the negative test results from Cleveland is an amazing response to medicine and the amazing grace of God. - Yeah!!!
2.) Monday night I came home from work and felt awful. I had nausea, vomiting and diarrhea and contractions started that night. It was looking pretty serious but after I got through some of the GI upset the contractions slowed and then stopped completely. I went to see my midwife Tues. afternoon. I wasn't in labor. The contractions were brought on from getting some bug and being sick. My stomach shrank by 2cm and I lost 1 pound. Grayson is sitting so low that my midwife says if he goes any lower we'll see his ears! I didn't dilate or make any further progress though. This was really dispappointing at the time but....God has a plan.
3.) Troy has been having tons of pain in his bottom during this past week. I thought it was from everything starting to heal on the inside and pull. He woke up this morning to definite infection in his incision on his bottom. His Dr. in Cleveland wants to see him right away and get a CT scan to make sure the infecton has not spread to his pouch. Troy is leaving at 4am Thur. to get to Cleveland by 8:15 for his test, Dr. appt and hopefully the opportunity to have his outer bag removed. Please pray that the infection is local to his incision site and can easily be treated without having to admit Troy to the hospital. He was scheduled to have the outer bag removed today but had to cancel the appointment because he didn't want to miss Grayson's birth. Now it seems Troy does not have a choice but go to Cleveland and we all have to pray Grayson stays inside for at least another 24 hours. Hopefully Troy will be home by 7pm tom. night and everything will work out fine. I have put myself on bedrest and my mom has taken Gavin so I don't get contractions. This poor bambino is so confused, "stay in" no, now "come out", no, "stay in."
The worse case scenario includes the infection making a channel on the inside of his body to his pouch and Troy having to stay in Cleveland for treatments and maybe surgery to clean everything up. His pouch seems to be working fine right now and there is no external evidence of infection to anywhere on his abdomen. Pray for encouragement spiritually and emotionally for Troy. He is so scared to have fought this hard to be here for me and Grayson only for this new development to make him miss it. Pray for Mid, Dick and Troy's safety as they travel to and from Cleveland. Pray for the wisdom of Dr. Dietz. Pray for the safety of Grayson and myself. God has not let me go into labor yet for this very reason. Isn't He amazing?
We are stressed out to say the least but we know everything is in God's hands and He has delivered amazing proof of his powerful hand every step of the way for Troy. Just please pray, however you can, whenever you can. I will keep the blog updated as I hear from Troy tom.
Alicia
1.) On Monday night I opened mail that had Troy's pathology results from Cleveland in it. Praise the Lord- all of Troy's lymph nodes came back negative for cancer and his tumor had been shrunk by chemo and radiation down to 1.1cm. The rest of the bowel that was removed looked healthy. From everything I can understand from the report it looks like an answer to many, many prayers. The only thing that can explain the positive lymph node tests from his ultrasound in October and the negative test results from Cleveland is an amazing response to medicine and the amazing grace of God. - Yeah!!!
2.) Monday night I came home from work and felt awful. I had nausea, vomiting and diarrhea and contractions started that night. It was looking pretty serious but after I got through some of the GI upset the contractions slowed and then stopped completely. I went to see my midwife Tues. afternoon. I wasn't in labor. The contractions were brought on from getting some bug and being sick. My stomach shrank by 2cm and I lost 1 pound. Grayson is sitting so low that my midwife says if he goes any lower we'll see his ears! I didn't dilate or make any further progress though. This was really dispappointing at the time but....God has a plan.
3.) Troy has been having tons of pain in his bottom during this past week. I thought it was from everything starting to heal on the inside and pull. He woke up this morning to definite infection in his incision on his bottom. His Dr. in Cleveland wants to see him right away and get a CT scan to make sure the infecton has not spread to his pouch. Troy is leaving at 4am Thur. to get to Cleveland by 8:15 for his test, Dr. appt and hopefully the opportunity to have his outer bag removed. Please pray that the infection is local to his incision site and can easily be treated without having to admit Troy to the hospital. He was scheduled to have the outer bag removed today but had to cancel the appointment because he didn't want to miss Grayson's birth. Now it seems Troy does not have a choice but go to Cleveland and we all have to pray Grayson stays inside for at least another 24 hours. Hopefully Troy will be home by 7pm tom. night and everything will work out fine. I have put myself on bedrest and my mom has taken Gavin so I don't get contractions. This poor bambino is so confused, "stay in" no, now "come out", no, "stay in."
The worse case scenario includes the infection making a channel on the inside of his body to his pouch and Troy having to stay in Cleveland for treatments and maybe surgery to clean everything up. His pouch seems to be working fine right now and there is no external evidence of infection to anywhere on his abdomen. Pray for encouragement spiritually and emotionally for Troy. He is so scared to have fought this hard to be here for me and Grayson only for this new development to make him miss it. Pray for Mid, Dick and Troy's safety as they travel to and from Cleveland. Pray for the wisdom of Dr. Dietz. Pray for the safety of Grayson and myself. God has not let me go into labor yet for this very reason. Isn't He amazing?
We are stressed out to say the least but we know everything is in God's hands and He has delivered amazing proof of his powerful hand every step of the way for Troy. Just please pray, however you can, whenever you can. I will keep the blog updated as I hear from Troy tom.
Alicia
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